I normally wake up around 5 am and take my first two Parkie pills of the day, then I take one at 9 am, another one at Noon, etc., until I've taken the last of the nine pills and go to bed around 11 pm.
I'm awake at 4:40 am and since it's a few days before my doctors appointment, I decide to try a day OFF of medication. I take a deep breath and skip my first two Parkie pills.
6 am: I feel okay, so I go walking with my neighbor. About half-way through our walk, my left foot cramps, badly, but I manage to hobble home.
7 am: I am still okay, but my stomach is growling , gurgling and doing flip-flops. This is not normal, so I eat breakfast (two hours earlier than usual).
8 am: Still okay, left foot cramping, but my stomach is not happy, so I eat some toast.
9 am: I am still able to move, albeit slower. My left foot continues to cramp. My stomach is still growling, so I try some chocolate chip cookies.
10 am: I am very jittery and moving much slower, but I am still able to walk. I'm hungry and eat more cookies. This OFF thing will make me fat if I'm not careful!
11 am: I can still move. Good! This is when my appointment time will be, in a few days, and I'm not stiff as a board or shaking like the paint mixer at the home improvement store.
12 pm: I can still move, but I am very rigid. My left foot continues to cramp. My stomach is still gurgling and growling. The tremors have started and I manage to eat lunch, but more peas end up on the floor than in my mouth.
1 pm: My entire body feels tense, like all my muscles are contracted. The tremors have worsened and my left foot keeps cramping, but I can still walk. I eat a couple more chocolate chip cookies, but it's not helping.
2 pm: Since I was told that I would be able to take my medications as soon as the doctor was done with me, I go ahead and stop the experiment. I take my first two Parkie pills and eat a few more cookies. Relief should come soon.
3 pm: No relief, I still feel the same, maybe slightly worse. I know this feeling, it's deja vu, this is how I felt in the days before I got diagnosed. I try to lie down, but cannot get comfortable, so I get up and eat a few more cookies.
4 pm: Some relief, finally. I celebrate with a few more cookies.
6 pm: I am back to my normal drug routine. I still feel a bit off; headache, stiff neck, groggy and my stomach is still wonky.
11 pm: I am exhausted but finally feeling more normal.
Conclusion: I should be able to make the drive to the doctor off meds, but it's going to be a rough day.
Note to self: pack lots of things to snack on and a bunch of cookies, lots of cookies.